Leadership Forum Executive Committee

  

Leadership Forum Executive Committee  

Co-chairs:

Emma Collins 

Ronnie Todaro, MPH

 

Maria Baretto, PhD

Jean Blake, MA

Fulvio Capitanio 
 
Polly Dawkins, MBA

Steve Ford

Sarah Jones, MPA

David Leventhal, BA

Helen Mathews, MBA

Hellen Mwithiga 

Russell Patten

Tanya Ramsey-Evans, BA

Jo-Anne Reeves, BA


Marie-Francoise Chesslet

Emma Collins (Australia) is the Chief Executive Officer of Parkinson’s Victoria, a NFP company providing health information and education to people living with Parkinson’s disease and their families, health care professionals and the broader community in Victoria, Australia. In addition, the organisation supports the development of more effective treatments and a cure for Parkinson’s through the funding of scientific and clinical research. Prior to joining Parkinson’s Victoria as CEO, Emma held a number of senior management roles including Executive Manager, Carer Representation and Engagement with Carer’s Victoria and General Manager, Community Services with Melton City Council where she successfully built community support to secure government and philanthropic funds for disadvantaged and vulnerable communities. Emma is passionate about people living with Parkinson's and their families leading full lives.

Ronnie Todaro, MPH has served the Parkinson's Foundation for more than a decade. As Chief Operating Officer, she ensures that the foundation’s resources meet the needs and priorities of people living with Parkinson’s through organizational strategy, execution and day-to-day operations. She is a recognized leader in patient engagement at the Foundation and in the community. As an advocate amongst industry, government, academia and nonprofits, she has worked to change the understanding of people with Parkinson’s, seeing that their insights are recognized and drive the foundation’s work in improving treatments and finding a cure. Previously, Ronnie held several leadership positions in the public health field, including her time with Planned Parenthood. She was formerly the Chair of the Patient Leadership Council, which was part of the Executive Committee for the Clinical Trials Transformation Initiative (CTTI). Ronnie also served as a member of the Advisory Panel on Patient Engagement for the Patient-Centered Outcomes Research Institute (PCORI) and the Advisory Committee of North America for the Drug Information Association.She has been an invited speaker at national and international conferences hosted by the NIH, U.S. Food and Drug Administration, Society for Clinical Trials and the World Parkinson Congress. Ronnie earned her MA in Public Health in Planning and Administration from the University of Michigan and her BA in Public Policy at Cornell University.

Patrik Brundin

Maria Baretto, PhD holds a PhD in  Psychology  from the University of Mumbai, India , with a career spanning  over  35 years in research, teaching, and consulting in the areas of psychology and in the development and  management of ‘not for profit’ organizations.  In the field of education she has held several positions including  Prof. of Psychology at the St Xavier’s college and Nirmala Niketan College of Dome Science and   Prof. of Human Resource Development at the Xavier’s Institute of Management. She has also developed several educational  programs for various organizations both at the national and international  including a program on inclusive education for UNICEF. 

Francesca de Bartolomeis Jean Blake, MA has spent the last 20 years in leadership positions for Parkinson Society British Columbia, the Alzheimer Society of BC and the Canadian Diabetes Association, Pacific Area. She has expertise in advocacy and government relations, revenue development, marketing and communications, programs and services, and financial management.
Jean also has more than 20 years of experience in the healthcare and education sectors with responsibilities in leadership, performance management, education, organizational effectiveness, and improving service delivery. 
Jean has her Masters’ degree in Education in adult and higher education. She has worked to build partnerships with government, health care, and business to advance the causes she has led. She is a visionary leader with a strong results orientation and a track record of building organizational capacity. She is a respected problem solver and coach with demonstrated ability to create motivated teams, ensuring successful and sustainable growth in a variety of organizations.

Fulvio Capitanio.jpg

Fulvio Capitanio (Spain) is an economist and ITC manager. He was diagnosed with Parkinson's in 2007 and retired from his job in 2009. In January of 2008, with a group of PD friends he met over the Internet, he started an online organization called "Unidos contra el Parkinson” (together against Parkinson's disease) at http://portal.unidoscontraelparkinson.com. In October 2009 Fulvio coordinated the group's Second International Meeting in Spain dedicated to promote the importance of complementary therapies in PD treatment. In March 2010 Unidos contra el Parkinson edited a comic "Through the eyes of a child” to help parents to explain PD to their children. In April 2010 started the project "Run 4 PD”, a worldwide event involving more than 100 cities from different countries to run and walk miles to raise awareness on PD. Fulvio,former WPC ambassador in 2013 and 2016, is now dedicated to help and assess young onset people with PD.

Kat HillPolly Dawkins, MBA brings 25 years of for-profit and nonprofit experience to the Davis Phinney Foundation. That experience includes 13 years leading business-to-business, engineering and international operations of a global satellite communications provider and, closer to her heart, creating a local fundraising chapter of an international literacy organization. Polly’s track record managing and growing organizations responsibly and with transparency dovetails with her humanitarian worldview. She is committed to making wise use of the Foundation’s resources, enabling it to extend its reach while staying true to its mission. Polly is passionate about helping people with Parkinson’s thrive by providing education and connection to community and funding quality of life research that takes the guesswork out of living well. Polly holds an MBA in International Business from Thunderbird School of Global Management and a BA in International Studies from Earlham College. When Polly isn’t behind her desk or traveling to Parkinson’s communities around the world, you’ll find her creating music lists for her indoor cycling classes, exploring Colorado on her road bike, swimming laps outside and hosting family and friends from around the world. Her spirit animal is a lizard, though, so you might also find her lying on a rock soaking up the sun..

Steve Ford

Sarah Jones, MPA 

Joy MilneDavid Leventhal, BA has been given the title of “Super Smeller”. It is a genetic trait of Hyperosmia with Synesthesia, resulting in an acute sense of smell, with related effects. Living with Parkinson’s disease for over 32 years, Joy first smelt a change in her Husband’s odor twelve years before he was diagnosed. It was only while attendiis a founding teacher and Program Director for Dance for PD®, a program of the Mark Morris Dance Group that has now been used as a model for classes in more than 300 communities in 25 countries.He leads classes for people living with Parkinson's disease around the world and trains other teaching artists in the Dance for PD® approach. He's co-produced three volumes of a successful At Home DVD series for the program and has been instrumental in initiating and designing innovative projects involving live streaming and Moving Through Glass, a dance-based Google Glass App for people with Parkinson's. He received the 2018 Martha Hill Mid-Career Award, the 2016 World Parkinson Congress Award for Distinguished Contribution to the Parkinson's Community and was a co-recipient of the 2013 Alan Bonander Humanitarian Award from the Parkinson's Unity Walk. He's featured in the award-winning 2014 documentary Capturing Grace directed by David Iverson. As a dancer, he performed with the Mark Morris Dance Group from 1997-2011, appearing in principal roles in some of Mark Morris' most celebrated works. He graduated from Brown University with honors in English Literature and received his early dance training at Boston Ballet School.

Helen Mathews, MBA

Hellen Mwithiga

Russell Patten is a British national born and bred in Europe. He has worked in the European communications and advocacy sphere for the last 30 years with a focus on health-related policies. He started his career in the European Commission, then went to work for an international law firm and then onto advocacy consultancies. He currently is the CEO of Grayling in Brussels, the seat of the EU, and the Chairman of the company's global government relations practice. He became the DG of the EPDA in 2019 having advised them in the previous 3 years on developing their long term vision & strategy. He has and holds a number of posts including SG/DG roles for industry trade associations, President of the British Chamber of Commerce in Belgium and a visiting Professor at several Universities. He is passionate about supporting organisations to help build better lives for people with Parkinson's and has been himself a carer.

Tanya Ramsey-Evans, BA

Fred Woodleif

Jo-Anne Reeves, BA has thirty years of experience in the for-purpose and related sectors. She worked in a variety of senior roles including communications, fundraising, bequest management and corporate relations before being appointed CEO of Parkinson’s NSW in early 2017. Prior to taking up her current role, Jo-Anne was General Manager of Fundraising and Marketing for Disability Services Australia. She has a wealth of experience in the for- purpose sector and has worked with organisations such as the University of NSW Foundation, The Children’s Hospital Westmead Fund, and the NSW Breast Cancer Institute. In her role as CEO of Parkinson’s NSW, Jo-Anne is responsible for diversifying sources of funding to enable the expansion of services for people living with Parkinson’s. She is strongly focused on advocating and seeking funding for the placement of more community-based Parkinson Neurological Nurses in Local Health Districts across NSW.

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