WPC Awards in 2019

The WPC Award for Distinguished Contribution to the Parkinson Community was created to honor those whose efforts best embody the goals of the World Parkinson Congress. While the three people being honored this year with this award have served the Parkinson’s community differently, they have all made great impact beyond their corner of the globe. Whether it was: to expand collaboration on basic and clinical research that engaged patients; to create new and innovative treatment options; to inspire community building and engagement by people with Parkinson’s and care partners; or to engage in specific advocacy efforts to impact the Parkinson community.

The WPC Robin A. Elliott Award for Service to the Community was created to honor the service of Robin A. Elliott who helped launch the World Parkinson Congresses in 2004. Robin’s 20 years of service to the community, as the head of the newly named Parkinson’s Foundation, and his commitment to supporting young researchers, clinicians, and people with Parkinson’s was evident in every decision he made. This award is being conferred on two individuals this year to honor their work to better the lives of people with PD with daily service and support that impacted their region of the world and often profoundly improved the lives of the individuals they serve.

WPC Award for Distinguished Contribution to the Parkinson Community recipients


Soania Mathur, BSC, MD, CCFP
Dr. Soania Mathur is a family physician living outside of Toronto, Ontario, Canada who had to resign her practice as a result of her Young Onset Parkinson's Disease a full twelve years after her diagnosis at age 27. Now she is a dedicated speaker, writer, educator and Parkinson's advocate. She speaks passionately about the challenges of adjusting physically and emotionally and the coping strategies available to patients to take charge of their lives, to live well with Parkinson’s.


Lorraine Ramig, PhD, SLP-CCC
Dr. Ramig is a Research Professor at the University of Colorado-Boulder, an Adjunct Professor at Columbia University-New York City and Chief Scientific Officer of LSVT Global-Tucson. For thirty years, Dr. Ramig has been leading the research team that pioneered LSVT LOUD, the first evidence-based speech treatment for Parkinson disease (PD). Dr. Ramig led the NIH-funded research team that pioneered LSVT LOUD, the first evidence-based speech treatment for Parkinson disease, currently being delivered in 60 countries.

Susanna Lindvall, BS Chem
An organic chemist by profession, Ms. Lindvall has been the vice-president of the European Parkinson’s Disease Association (EPDA) since 2005 where she has been the driving force of the EPDA Awareness Campaign “Life with Parkinson’s.” Ms. Lindvall has always promoted the importance of research, and collaboration between patients, healthcare professionals, academia and industry in order to improve care and services for those living with Parkinson’s disease. She has served as president of both the Swedish Parkinson's Disease Association, and the Swedish Parkinson Foundation, and is a co-founder of the Swedish Parkinson Academy.

WPC Robin A. Elliott Award for Service to the Community recipients


Nancy Tingey, OAM, CF, MA, BA
Ms. Tingey is a caregiver and art facilitator who, following her husband’s diagnosis with Parkinson’s, founded Painting with Parkinson’s in Canberra Australia, the longest running art program in the world designed specifically to address Parkinson’s symptoms and running continuously for nearly 25 years. She holds an Order of Australia Medal for services to community health.

Sara Lew Lai Heong
Ms. Lew, President of the Malaysian Parkinson’s Disease Association (MPDA) has been serving the association for the past 24 years. Sara became involved in Parkinson’s work in 1995 because of her late father who had Parkinson’s disease for 21 years before he passed away in 2011. Her work to improve the lives of people with Parkinson’s includes securing more cost-affordable medications across Malaysia, getting Parkinson’s designated as a disability, which increased services and benefits from the government, and helping to secure funding to purchase a permanent a home for the organization’s members to be able to meet regularly and get the support they need.
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